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Monday, February 6, 2012

Can you hear me? The evidence is likely contradictory.

I have not been a very good sensory mama blogger of late. Been too busy with the regular machinations of life with a sensory kid. If you've got such a child, you may recognize a few of these... battling over meals, trying to get them to wear clothes they've said are fine only to find out they are not wearing them... and so much more. 

I believe I left off on the hearing aid issue with a young boy unable to handle the thought of a gooey substance in his ear for even a few seconds in order to make a hearing aid mold. That was back in September. 

Fast forward to January and we have had numerous regular visits between my boy and an ESD (Educational Service District) worker to help him understand his hearing loss, hearing aids, possible benefits of wearing them, etc. He finally has a temporary set but struggles to adjust to the feedback that happens when he doesn't push them in far enough. Ah the yin and yang of sensory issues... not in far enough = fuzzy feedback noises (no good) vs. in far enough = discomfort of a tiny rubber foreign object inside ones very sensitive ear canal (no good). Fun. 

We have gotten to the point that the boy knows he must wear them at least a half a day at school weekly in order to get to hang out once a week at an after school program he enjoys. I didn't want to pit those against one another but figured it was only fair that he try to compromise the tiniest bit. 

The thing at this point is that the boy has worn them a couple of times for a few hours at a time and while he doesn't think they help much, he can do it. To be honest, I don't want to currently fight for more than the one day a week because I know how ugly it can get. Maybe that makes me an ineffectual parent or maybe one who understand her boy's sensory issues. I'm not quite clear on this these days. He will no doubt have to be seen again at the ESD soon enough and I am sincerely hoping they can test his hearing with and without the hearing aids to show if it is making a difference at all for our boy. At least then we'd be armed with some "evidence". 

When it comes to sensory issues, however, evidence can always be contradicted. 

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